Information for parents/carers

Effective communication can be challenging even in ordinary circumstances, and it becomes even more difficult when faced with the serious matters that accompany a brain tumour diagnosis within your family. To assist you in navigating these conversations, The Little Brainstrust offer a continuously evolving resource designed to address the specific challenges you may encounter when discussing topics related to brain tumours. This resource aims to provide guidance and support, helping you navigate these difficult discussions and to assist you in talking to your child and wider family.

Young Lives vs Cancer are here to guide you and provide the answers to any questions you may have regarding your child’s diagnosis and treatment. Their dedicated team is committed to assisting you in finding the information and support you need to navigate this journey.

When your child receives a diagnosis of a brain tumour, it can be an overwhelming and frightening experience. The medical professionals will provide you with a wealth of information regarding different treatment options, but it’s natural to feel confused and overwhelmed during such a challenging time.

The Brain Tumour Charity are here to support parents/carers in understanding the purpose and rationale behind each treatment approach, how they function, the procedures involved (including what to expect), as well as the potential short-term and long-term side effects. Their aim is to empower you with knowledge, enabling you to ask pertinent questions to your child’s healthcare team and make well-informed decisions regarding their treatment.

By providing you with comprehensive information and guidance, The Brain Tumour Charity strive to alleviate some of the uncertainties and help you navigate this challenging journey with greater confidence and understanding.

The Children’s Cancer and Leukaemia Group has written this useful guide for parents.

This site from Brain Tumour Research provides information on brain tumours including the difference between low grade and high grade tumours.

Little Brainstrust have compiled a collection of resources that may provide valuable assistance. These resources are available free of charge to both brain tumour patients and their loved ones. Hard copies of these publications are also available from them, on request.

The Children’s Cancer and Leukaemia Group offer a large selection of leaflets covering many topics around children’s cancer. All of their publications are free of charge and are available from hospitals treating children with cancer, or can be downloaded or ordered from their website.

Comprehensive information from Cancer Research UK on children’s brain tumours including primary and secondary tumours.

Detailed information about brain tumours provided by the National Health Service.