Information & Education
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Talking about brain tumours with your child and your family
Effective communication can be challenging even in ordinary circumstances, and it becomes even more difficult when faced with the serious matters that accompany a brain tumour diagnosis within your family. To assist you in navigating these conversations, The Little Brainstrust offer a continuously evolving resource designed to address the specific challenges you may encounter when discussing topics related to brain tumours. This resource aims to provide guidance and support, helping you navigate these difficult discussions and to assist you in talking to your child and wider family.
My child has cancer
Young Lives vs Cancer are here to guide you and provide the answers to any questions you may have regarding your child’s diagnosis and treatment. Their dedicated team is committed to assisting you in finding the information and support you need to navigate this journey.
Dealing with school – CCLG
The Children’s Cancer and Leukaemia Group website contains lots of information to help with returning to school. There is also a publication for teachers called “Supporting your pupil after a cancer diagnosis” which can be ordered online.
Publications for school teachers – CCLG
This guide for teachers is produced by the Children’s Cancer and Leukaemia Group. The aim is to lessen some of the worries teachers may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.
My student has cancer – Young Lives vs Cancer
This Young Lives vs Cancer website has advice for teachers of students with cancer. Cancer affects the lives of young people in diverse ways, and their ability to continue attending school, college, or university is contingent upon their treatment plan. While some may be able to carry on with their studies as usual, others may require time off. As someone who plays a crucial role in their further or higher education, you have the opportunity to support them in staying connected to learning and offering much-needed continuity in their lives amidst the disruptions caused by cancer. Teachers can order a free Cancer and School Life pack from this website.
Help with discussing a brain tumour diagnosis – Little Brainstrust
Effective communication can be challenging even in ordinary circumstances, and it becomes even more difficult when faced with the serious matters that accompany a brain tumour diagnosis within your family. To assist you in navigating these conversations, The Little Brainstrust offer a continuously evolving resource designed to address the specific challenges you may encounter when discussing topics related to brain tumours. This resource aims to provide guidance and support, helping you navigate these difficult discussions and to assist you in talking to your child’s school and teachers.
Education resources | The Brain Tumour Charity
Transitioning back to nursery, school, or college following a brain tumour diagnosis can present challenges for the child, parents, and teachers involved. To assist with this process, The Brain Tumour Charity have produced educational materials to provide support. Their “I’m still me” resources have been carefully developed to empower teachers in their efforts to support children affected by brain tumours.
Our publications: for teenagers and young adults – CCLG
Children’s Cancer and Leukaemia Group provides lots of information leaflets for teenagers and young adults facing cancer. All of their leaflets and publications can be downloaded or ordered from their website, free of charge.
I have cancer: Help and advice you might need – Young Lives vs Cancer
Young Lives vs Cancer understands the profound impact of receiving a cancer diagnosis as a teenager or young adult. They recognise that it disrupts significant aspects of your life, and receiving assistance and guidance regarding these matters can make an immense difference. Young Lives vs Cancer provides an invaluable resource for everything you may require while navigating your cancer journey, regardless of how long you have been facing it.
Animations explaining brain tumours | The Brain Tumour Charity
The Brain Tumour Charity offers a range of animations that explain various subjects related to brain tumour patients. Originally designed for children, these animations have proven to be informative and beneficial for people of all ages, helping them understand the complexities of brain tumours.
Publications: for younger children – CCLG
Children’s Cancer and Leukaemia Group provides lots of publications for children facing cancer. All of their leaflets and publications can be downloaded or ordered from their website, free of charge.
Child treatment for brain tumours | The Brain Tumour Charity
When your child receives a diagnosis of a brain tumour, it can be an overwhelming and frightening experience. The medical professionals will provide you with a wealth of information regarding different treatment options, but it’s natural to feel confused and overwhelmed during such a challenging time.
The Brain Tumour Charity are here to support parents/carers in understanding the purpose and rationale behind each treatment approach, how they function, the procedures involved (including what to expect), as well as the potential short-term and long-term side effects. Their aim is to empower you with knowledge, enabling you to ask pertinent questions to your child’s healthcare team and make well-informed decisions regarding their treatment.
By providing you with comprehensive information and guidance, The Brain Tumour Charity strive to alleviate some of the uncertainties and help you navigate this challenging journey with greater confidence and understanding.
My child has a brain or spinal tumour – downloadable information leaflet
The Children’s Cancer and Leukaemia Group has written this useful guide for parents.
What is a Brain Tumour | Low-grade & High-grade
This site from Brain Tumour Research provides information on brain tumours including the difference between low grade and high grade tumours.
Resources – Little Brainstrust
Little Brainstrust have compiled a collection of resources that may provide valuable assistance. These resources are available free of charge to both brain tumour patients and their loved ones. Hard copies of these publications are also available from them, on request.
Downloadable Information leaflets from CCLG
The Children’s Cancer and Leukaemia Group offer a large selection of leaflets covering many topics around children’s cancer. All of their publications are free of charge and are available from hospitals treating children with cancer, or can be downloaded or ordered from their website.
Brain tumours | Children’s cancer | Cancer Research UK
Comprehensive information from Cancer Research UK on children’s brain tumours including primary and secondary tumours.
Brain tumours – NHS
Detailed information about brain tumours provided by the National Health Service.
Explore More Resources
Browse other categories in our Information Toolkit to find more helpful resources and support.