Emotional support

Rainbow Trust provides emotional and practical support to families who have a child with life-threatening or terminal illness. Each family is matched with a Family Support Worker who gives them practical and emotional support for as long as help is needed. The Rainbow Trust support the whole family including parents, carers, the unwell child, siblings and grandparents. Please check their website for the geographical areas covered by this service. Online support is also available to families who meet certain criteria, regardless of location.

Children with Cancer UK is committed to enhancing awareness and understanding of cancer in children and young people. They actively support the exploration of innovative methods to identify cancer in this specific age group and strive to discover improved and more compassionate treatment approaches. By raising awareness, offering support to families, and funding research, Children with Cancer UK aims to ensure that more children can survive cancer without enduring the life-restricting side effects often associated with remission.

East Anglia’s Children’s Hospices (EACH) offers a family-centered, needs-led approach to care, ensuring that all the needs of the children and young people under their care are met. This includes addressing their psychological, physical, emotional, social, and spiritual well-being.

EACH prioritise giving families flexibility and control over where they receive care and support, including end-of-life care. Families have the choice of receiving care at home, in a hospital, or at one of their three hospices: Milton, The Nook, and The Treehouse.

EACH’s dedicated team consists of qualified professionals, such as nurses, clinical nurse specialists, counsellors, care assistants, play specialists, music therapists, art therapists, physiotherapists, occupational therapists, a family therapist, spiritual care advisors, chaplains, chefs, housekeeping staff, and a consultant nurse. Working together, they provide comprehensive care and support to meet the unique needs of each individual and their family under the care of East Anglia’s Children’s Hospices.

 

Dedicated to supporting children and families, Little Brainstrust provides personalised assistance to all those affected by childhood brain tumours. Through coaching support, event organisation, and resource development, Little Brainstrust ensures that every family member can experience their best possible day, every day. The support offered by Little Brainstrust is available to anyone affected by any type of brain tumour. Recognising the overwhelming emotions experienced by families in the face of a brain tumour diagnosis, Little Brainstrust serves as a reliable support system.

The Children and Families Team at The Brain Tumour Charity are fully committed to supporting you. Whether you require information and guidance regarding a new diagnosis or seek insights about life following a diagnosis, their team is available to accompany you every step of the journey.

Cancer Research UK funds doctors and nurses and scientists to help beat cancer. They also provide cancer information to the public. This link will take you to a list of organisations that can provide support.

Tom’s Trust is fully committed to delivering psychological support to children with brain tumours and their families. Their vision is to create a world where every child with a brain tumour, along with their loved ones, has access to the necessary mental health support. As the sole charity in the UK focused on providing psychological assistance for children with brain tumours, Tom’s Trust is actively challenging the prevailing attitudes towards mental health. Tom’s Trust prioritise immediate access to a psychologist for children from the moment of diagnosis.