Emotional & Community Support

The It’s Never You app offers a safe, welcoming space for parents and carers of children with cancer to connect with others who truly understand. Through secure, moderated forums, users can share experiences, ask questions, and receive emotional support from a community walking a similar path. Whether you’re seeking advice or simply someone to listen, the app helps you feel less alone — available anytime, right from your phone.

Download the app via the link.

Rainbow Trust provides emotional and practical support to families who have a child with life-threatening or terminal illness. Family support workers provide online support to families who meet their criteria and support includes play sessions via video call (the charity send a support bag that will be used during video calls), support for family and peer support groups.

Rainbow Trust provides emotional and practical support to families who have a child with life-threatening or terminal illness. Each family is matched with a Family Support Worker who gives them practical and emotional support for as long as help is needed. The Rainbow Trust support the whole family including parents, carers, the unwell child, siblings and grandparents. Please check their website for the geographical areas covered by this service. Online support is also available to families who meet certain criteria, regardless of location.

Children with Cancer UK has been working tirelessly since 1988 to fund research and initiatives that support children and their families throughout their cancer journey. Every day, Children with Cancer UK strives to increase awareness and understanding of cancer in children and young people. They support finding new ways to identify cancer in children and young people, as well as discovering better and kinder treatment methods, means more children will survive without experiencing the life-inhibiting side effects often associated with remission. Children with Cancer UK raises awareness, supports families and funds research.

Brain Tumour Research is the only national charity in the UK dedicated to raising funds for continuous and sustainable scientific research into brain tumours. Their mission is to increase the UK investment in brain tumour research. Just 1% of the national spend on cancer research has been allocated to studying brain tumours but Brain Tumour Research is determined to change this! Brain Tumour Research is the only national charity in the UK focused on finding a cure for all types of brain tumours. They campaign to increase the national investment in brain tumour research to £35 million per year and fundraise to create a network of seven sustainable Brain Tumour Research Centres of Excellence across the UK.

Young Lives vs Cancer understand the challenges children and young people (aged 0-25) and their families face when dealing with cancer. As a charity, Young Lives vs Cancer is dedicated to providing support and empowering them to confront whatever obstacles cancer presents. Young Lives vs Cancer strives to ensure that each family has the necessary resources to navigate the cancer journey. This may involve offering financial grants to parents who are struggling with household bills or assisting young individuals who cannot afford transportation to the hospital. Additionally, Young Lives vs Cancer provides the opportunity for families to stay together at one of their complimentary Homes from Home, conveniently located near the hospital where their child is undergoing treatment.

The Brain Tumour Hub is a comprehensive and user-friendly database specifically designed for brain tumour patients and carers. It provides a wealth of authoritative information, including support resources and details of UK-based clinical trials for brain tumours. With the valuable input from brain tumour patients, carers, and prominent neuro healthcare professionals, The Brainstrust has created this site to assist you and to support you throughout your journey.

Little Brainstrust is dedicated to helping children and families, providing personalised support for everyone affected by a childhood brain tumour. Little Brainstrust offers coaching support, organises events, and builds resources for all members of the family, ensuring that they can have their best possible day, every day. The support provided by Little Brainstrust is available to everybody affected by any type of brain tumour.

The Brain Tumour Charity is the foremost global brain tumour charity and the primary contributor to research funding for brain tumours worldwide, The Brain Tumour Charity strives to save and enhance lives. They are determined to make significant progress in aiding every individual affected by a brain tumour. Their focus lies in discovering innovative treatments, providing unparalleled support, and advocating for swift and imperative change. The Brain Tumour Charity are committed to investing in progressive research, expanding specialist support services, and actively campaigning for urgent transformations.

Children’s Cancer and Leukaemia Group (CCLG) is a leading children’s cancer charity and the professional association for healthcare providers involved in the treatment and care of children with cancer in the UK and Ireland. CCLG is the only organisation that brings together all professionals working within childhood cancer to share expertise and knowledge, aiming to improve treatments and enhance patient care. Their ultimate objective is to cure as many children as possible while minimising the side effects of treatment.

HeadSmart is part of the Brain Tumour Charity and provides information on Signs and Symptoms of Brain Tumours. It has sections divided by age group – babies, children, teens and adults. Headsmart also provide information to assist healthcare professionals in identifying the typical signs and symptoms that may indicate a brain tumour in children and young people under the age of 18. They provide materials designed to provide guidance and support in recognising potential indicators of brain tumours in this particular age group.

Little Brainstrust has a Facebook support group for parents and virtual friends for teenagers.

Young Lives vs Cancer have set up several Facebook groups including ones for 16 – 25 year olds, parents and carers, dads and bereavement groups.

Astro Brain Tumour Fund has set up a private Facebook group for Low grade patients and their families. Their website also lists other online support groups.

The Brain Tumour Charity support groups provide a secure online environment where you can connect with individuals who understand your experiences. It’s a place where you can ask questions, receive support from others, and freely share your own journey at any hour, day or night. This safe space allows you to be completely open, and you can also find solace in reading the stories of others who are walking a similar path alongside you.

You can speak to the social care team at Young Lives vs Cancer using Live Chat on the website (Monday – Friday 10am – 4pm), chat over the phone or drop them an email and they’ll get back to you. This site also lists other organisations should you need urgent support outside their opening hours.

Lennox Children’s Cancer fund offer telephone support for your family members. You will be provided with a dedicated contact number for their Family Support Team, allowing you to call or message them at any time of day, every day of the year.

The Brain Tumour Charity provide a Support and Information Line which is a confidential and supportive environment for you to ask questions. Their dedicated team is available to lend a listening ear, offer guidance, and connect you with relevant information and resources. Whether you have enquiries about a diagnosis, treatment options, the impact of a brain tumour on daily life, or supporting a loved one, their Support and Information Line is here to assist you. Additionally, they can direct you to other valuable services when necessary.

Brain Tumour Research have put together a webpage which lists the details of several different charity helplines that can support you by telephone. They are provided by Brainstrust, Brain and Spine Foundation and Brain Tumour Action.