We take every opportunity we can to provide the public with information about the symptoms of brain tumours and childhood cancer, including through information stands and social media. We're also working to improve awareness among healthcare professionals.
We're also a proud member charity of Brain Tumour Research, who campaign for improvements in the treatment and care of brain tumour patients, as well as funding their own research into the disease.
We give families of children with a diagnosis or suspected diagnosis of cancer and brain tumours grants to help cover some of the costs faced upon initial diagnosis, such as travelling to a far away hospital, car parking and food whilst away from home.
We've developed an information toolkit for families to direct them to the best online resources and connect them with charities and services that can help them locally.
We are committed to making every family feel that they are supported when and where they need to be - we have a small team of volunteers to support families emotionally and practically in their homes and at hospital. By mid-2024 we aim to employee a specialist support worker who will lead the support team.
We are also working on a project to provide a more comforting environment for children and families attending chemotherapy clinics at the Norfolk & Norwich University Hospital.
We support research into childhood brain tumours and potential treatments - since 2017 we have donated almost £60,000 to research projects that will help children with brain tumours.
In 2018/19 we supported Prof. Andrew Peets team, based at Birmingham Children's Hospital, developing a technique to use MRI scanners to identify the aggressiveness of a brain tumour without invasive biopsy brain tumour, which may in turn help guide treatment.
Most recently we have supported research at Queen Mary University of London, a Brain Tumour Research Centre of Excellence, looking into potential treatments for brain tumours that affect children.